Wednesday, July 14, 2010
3 weeks Post Procedure
Thursday, July 8, 2010
2 weeks post CCSVI procedure
PS:
POST- CCSVI PROCEDURE -SLOWER RECOVERY Support and discussion GROUP
Wednesday, June 30, 2010
1 week after the CCSVI angioplasty
Long story short, they found two "mild" stenosis, one in the left jugular and one in my Asygous vein. I'm told mild is 30%. The doctor treated both with angioplasty.
I'm glad they found what they were looking for and I'm glad they treated it. Also as the doctor who treated me said, " We have seen people respond even when the stenosis is a mild one. "
There were no miracle "Youtube" Recoveries. So I will hold off on making a post video as yet. Maybe in a month?
I did not and have not yet, as of 1 week later, felt any clear improvements. I have some maybe's but maybe's could be placebos because I am so desperate to see improvement.
List of maybe improvements:
-Fatigue? maybe a bit better (but it is 20 degrees cooler outside that always helps)
-That buzzing sensation down neck gone ( but over the years that has always come and gone.)
-Sweating....... I seem to sweat easier. (I'm a sauna taker, before procedure I didn't sweat easily it took a long while and some times several trips in. Last night the sweat kicked right in.)
So as you can see it is pretty slim. However I want to say that initially when I discovered CCSVI all I hoped for was the possibility of halting progress. I am dealing with what I have now. Knowing that I won't get worse would be fabulous!
Only time will tell.... and maybe progress is slow in coming. I certainly hope so.
I also want to thank all my wonderful friends and family for supporting me during this adventure....... because it certainly has been an adventure. I am so lucky to have a community that backs me up.
xxx's
~retta
Friday, May 28, 2010
Baseline video Pre Procedure...
And on uneven surfaces...
Thursday, May 27, 2010
My life with MS right now
Before vascular angioplasty:After........and
RETTAHB'S STUFF"
Before CCSVI Liberation Procedure Chart
( Later I will add "After" )
1.Before: Right Foot almost completely numb and thick feeling. Occasionally left foot feels numb.
2. Before: right leg stiff, weak & limited in movement
3. Before: Because of Right Foot drop and weak leg and lack of coordination walking is very difficult. Cane and foot brace mandatory for any distance outside of the house. Uneven surfaces a maneuvering nightmare.
4. Before: Can not look up or around while moving dizziness & room spins. Need to hold on to something to look at the sky. Easily thrown off balance. Must turn or look slowly.
5. Before: Extreme mind numbing fatigue periodically throughout the day. Recooperate for 20 minutes after 10 minutes of activity.
6. Before: Heat busts my butt. Can’t do anything but sit or lay down.
7. Before: Constant ringing in ears.
8. Before: Cold feet. In winter almost painful especially the right foot.
9. Before: Occasional roaring in ears. Like when you yawn, but I’m not yawning.
10. Before: No lift to right leg which makes climbing stairs an awesome task to contemplate. Like knee, Hip fexors don’t lift either.
11. Before: 2 toes on Right foot turn blue… same toes that have no lift.
12. Before: Totally spastic walking first thing in the morning.
13. Before: Occasional Brain fog. Can’t think quickly or verbalize quickly often get tongue tied.